The Day my Autism Saved my Daughter’s Life

I wrote this back in October. Then I decided not to post it. Why? Because I feared judgement. When it happened I blamed myself. I should have been watching every second. I should have been better. I had run a risk assessment of the field: I'd noted no heights to fall from, no water to fall … Continue reading The Day my Autism Saved my Daughter’s Life

New Year’s Eve

Here I go again. Travelling off to see people for New Year's Eve. Quite the social butterfly. I'm sitting, strapped down, wings tucked in, as we race through the windy, Welsh roads. All corners. Welsh roads skirt every obstacle, and when your country is built of valleys carved by water and its wayward passage making, … Continue reading New Year’s Eve

Overcoming autism?

I often read this narrative online, "So-and-so overcame their autism and succeeded at something." It makes me feel uncomfortable. It makes me worry that one day someone might say, "Rhi overcame her autism to write", which would be to fundamentally misunderstand both me and my autism. One of the positives of autism can be … Continue reading Overcoming autism?

Neurotypical Awareness

Being diagnosed late in life has meant that I've needed to learn a lot about a new subject that I didn't know applied to me. I've read personal accounts written by autistic people, I've read research papers, I've looked into coping mechanisms - and mostly found that I've built my own solutions over the years … Continue reading Neurotypical Awareness

To the lonely neurotypical parent…

I saw a post today by a parent of an autistic child. It was reaching out. Reaching out for people. It spoke about the loneliness of being a neurotypical parent who wanted to connect with the people around her, but who put her autistic child's needs first, because they couldn't cope with the interactions. I … Continue reading To the lonely neurotypical parent…

I don’t speak for your child

I can't speak for your child. I keep coming back to this. I can't speak for everyone. I've had a lifetime of people assuming they know what I think by my actions. Assuming that they know who I am at a glance. People still make assumptions. When I write things, those who don't want to … Continue reading I don’t speak for your child

Labelling

This morning my car wasn't happy, so I took my son's go-kart-in-car's-clothing on the school run. He's not passed his test yet, so it has Learner Plates on it. And oh how they make a difference to how other drivers behave around you. Most people give you a bit more space, just in case … Continue reading Labelling

Autism and Work

Below is an account of a time when other people's poor communication, and my lack of understanding of myself, led to me having to leave a job for the sake of my health. Workplace bullying isn't restricted to autistic people, but it is very common. A perfect storm of social expectations, misunderstandings and being misunderstood, … Continue reading Autism and Work

Curing Autism

Can we talk about a cure? There's a real problem when it comes to Autism, and it's not to be found in us autistics. It's to be found in the focus of funding. Time and time again I see people struggling to get diagnosed, and then struggling when there is so little real support … Continue reading Curing Autism

Diagnosis, Rain and Tractors

Why now? What brought me to diagnosis in my thirties? It began with a random article. It was about the under-diagnosis of autistic women. I had no particular reason to read that particular article. It just sounding interesting. It was just there. As I read, a tingly feeling started in the back of my neck. … Continue reading Diagnosis, Rain and Tractors